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Last Name
Institution

Jordan T Jones, DO, MS

TitleAssociate Professor of Pediatrics
InstitutionChildren's Mercy Kansas City
DepartmentPediatrics
Address2401 Gillham Rd
Kansas City MO 64108
ORCID ORCID Icon0000-0003-0986-4991 Additional info
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    Other Positions
    TitleAssistant Professor of Pediatrics
    InstitutionChildren's Mercy Kansas City
    DepartmentPediatrics

    TitleClinical Assistant Professor of Pediatrics
    InstitutionUniversity of Kansas School of Medicine
    DepartmentPediatrics


    Collapse Biography 
    Collapse education and training
    Drury University, MO12/2004Biology, Global Studies
    Des Moines University, IA06/2009Doctorate Osteopathic Medicine
    University of Kansas School of Medicine, KS06/2012Pediatric Residency
    University of Cincinnati, OH05/2015Clinical and Translational Research
    Cincinnati Children’s Hospital Medical Center, OH06/2015Pediatric Rheumatology Fellowship
    Children’s Mercy Kansas City, MO07/2021Research Integrity Fellowship

    Collapse Research 
    Collapse research overview
    Dr. Jones is a board-certified pediatric rheumatologist at Children’s Mercy Kansas City. He is an Associate Professor of Pediatrics at University of Missouri-Kansas City and Clinical Assistant Professor of Pediatrics at University of Kansas. He completed medical school at Des Moines University, pediatric residency at University of Kansas – Wichita, pediatric rheumatology fellowship at Cincinnati Children’s Hospital Medical Center and a Master of Science in Clinical and Translational Research at University of Cincinnati. Dr. Jones is the medical director of the Joint Hypermobility and Ehlers Danlos Syndrome Center of Excellence and is an internationally recognized expert in joint hypermobility, hypermobile Ehlers Danlos syndrome and Down syndrome-associated arthritis. Outside of clinical care, his research focus includes awareness, education and management of hypermobile Ehlers Danlos syndrome, awareness, novel screening for early diagnosis and treatment of Down syndrome-associated arthritis, and pharmacologic therapy for rheumatic disease.

    Collapse Bibliography 
    Collapse selected publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
    List All   |   Timeline
    1. Callen EF, Clay TL, Cogan W, Black WR, Jones JT, Mabachi N. Community Social Networking for Ehlers-Danlos Syndrome. Health Educ Behav. 2024 Oct 30; 10901981241292275. PMID: 39474797.
      View in: PubMed
    2. Hertel AK, Black WR, Lytch A, Cramer E, Malloy Walton L, Jones JT. Cardiovascular, autonomic symptoms and quality of life in children with hypermobile Ehlers-Danlos syndrome. SAGE Open Med. 2024; 12:20503121241287073. PMID: 39420997.
      View in: PubMed
    3. Black WR, Singleton J, Wang X, Harris JG, Jones JT. Effect of joint hypermobility on outcomes of children with juvenile idiopathic arthritis. Clin Rheumatol. 2024 Nov; 43(11):3449-3455. PMID: 39227525.
      View in: PubMed
    4. Saper VE, Tian L, Verstegen RHJ, Conrad CK, Cidon M, Hopper RK, Kuo CS, Osoegawa K, Baszis K, Bingham CA, Ferguson I, Hahn T, Horne A, Isupova EA, Jones JT, Kasapcopur ?, Klein-Gitelman MS, Kostik MM, Ozen S, Phadke O, Prahalad S, Randell RL, Sener S, Stingl C, Abdul-Aziz R, Akoghlanian S, Al Julandani D, Alvarez MB, Bader-Meunier B, Balay-Dustrude EE, Balboni I, Baxter SK, Berard RA, Bhattad S, Bolaria R, Boneparth A, Cassidy EA, Co DO, Collins KP, Dancey P, Dickinson AM, Edelheit BS, Espada G, Flanagan ER, Imundo LF, Jindal AK, Kim HA, Klaus G, Lake C, Lapin WB, Lawson EF, Marmor I, Mombourquette J, Ogunjimi B, Olveda R, Ombrello MJ, Onel K, Poholek C, Ramanan AV, Ravelli A, Reinhardt A, Robinson AD, Rouster-Stevens K, Saad N, Schneider R, Selmanovic V, Sefic Pasic I, Shenoi S, Shilo NR, Soep JB, Sura A, Taber SF, Tesher M, Tibaldi J, Torok KS, Tsin CM, Vasquez-Canizares N, Villacis Nunez DS, Way EE, Whitehead B, Zemel LS, Sharma S, Fern?ndez-Vi?a MA, Mellins ED. Interleukin (IL)-1/IL-6-Inhibitor-Associated Drug Reaction With Eosinophilia and Systemic Symptoms (DReSS) in Systemic Inflammatory Illnesses. J Allergy Clin Immunol Pract. 2024 Nov; 12(11):2996-3013.e7. PMID: 39002722.
      View in: PubMed
    5. Black WR, Black LL, Goldstein-Leever A, Fox LS, Pratt LR, Jones JT. The need for primary care providers in the clinical management of hypermobility spectrum disorders and ehlers-danlos syndrome: a call to action. Rheumatol Int. 2024 11; 44(11):2273-2278. PMID: 39110211.
      View in: PubMed
    6. Jones JT, Black LL, Black WR. Patient and Parent Knowledge, Understanding, and Concerns After a New Diagnosis of Ehlers Danlos Syndrome. Res Sq. 2024 Jun 10. PMID: 38946955.
      View in: PubMed
    7. Harris JG, Jones JT, Favier L, Fox E, Holland MJ, Ivy A, Hoffart CM, Ibarra M, Cooper AM. Improving Pneumococcal Vaccination Rates in Immunosuppressed Pediatric Patients with Rheumatic Disease. Pediatr Qual Saf. 2024 May-Jun; 9(3):e725. PMID: 38751894.
      View in: PubMed
    8. Hertel A, Black WR, Malloy Walton L, Martin J, Jones J. Cardiovascular Symptoms, Dysautonomia, and Quality of Life in Adult and Pediatric Patients with Hypermobile Ehlers-Danlos Syndrome: A Brief Review. Curr Cardiol Rev. 2024 Jan 24. PMID: 38275067.
      View in: PubMed
    9. Black WR, Black LL, Jones JT. Barriers to the Diagnosis, Care, and Management of Pediatric Patients With Ehlers-Danlos Syndrome in the United States: A Qualitative Analysis. Glob Pediatr Health. 2023; 10:2333794X231212081. PMID: 38024462.
      View in: PubMed
    10. Jones JT, Talib N, Cramer E, Gasparovich ME, Schroeder EN, McLaughlin M, Kitchen J. Normal joint range of motion in children with Down syndrome. Am J Med Genet C Semin Med Genet. 2023 12; 193(4):e32076. PMID: 37916894.
      View in: PubMed
    11. Black WR, Jones JT, Rush ET, Malloy Walton L, Harding A. Development of a Multidisciplinary Clinic for Patients with Ehlers Danlos Syndromes: Considerations and Strategies. J Multidiscip Healthc. 2023; 16:191-195. PMID: 36714240.
      View in: PubMed
    12. Jones JT, Black WR, Moser CN, Rush ET, Malloy Walton L. Gender dysphoria in adolescents with Ehlers-Danlos syndrome. SAGE Open Med. 2022; 10:20503121221146074. PMID: 36600979.
      View in: PubMed
    13. Rubinstein TB, Dionizovik-Dimanovski M, Davis AM, Smith C, Faust L, Rutstein B, Mitchell M, Jones JT, Harris JG, Rodriguez M, Tesher M, Onel K, Gabbay V, Stein REK, von Scheven E, Knight AM. Multicenter Study of Utility and Acceptability of Depression and Anxiety Screening in Adolescents and Young Adults With Childhood-Onset Systemic Lupus. Arthritis Care Res (Hoboken). 2023 04; 75(4):724-733. PMID: 34806329.
      View in: PubMed
    14. Jones JT, Black WR, Cogan W, Callen E. Resource utilization and multidisciplinary care needs for patients with Ehlers-Danlos syndrome. Mol Genet Genomic Med. 2022 11; 10(11):e2057. PMID: 36151850.
      View in: PubMed
    15. Jones JT, Black WR. Provider Knowledge and Experience in Care, Management, and Education of Pediatric Ehlers-Danlos syndrome. Glob Pediatr Health. 2022; 9:2333794X221112841. PMID: 35873707.
      View in: PubMed
    16. Jones JT. Treatment of Down Syndrome-Associated Arthritis with JAK Inhibition. Case Rep Rheumatol. 2022; 2022:4889102. PMID: 35879952.
      View in: PubMed
    17. Jones JT, Kitchen J, Talib N. Down Syndrome-Associated Arthritis (DA): Diagnostic and Management Challenges. Pediatric Health Med Ther. 2022; 13:53-62. PMID: 35311022.
      View in: PubMed
    18. Jones JT, Smith C, Becker ML, Lovell D. Down Syndrome-Associated Arthritis Cohort in the New Childhood Arthritis and Rheumatology Research Alliance Registry: Clinical Characteristics, Treatment, and Outcomes. Arthritis Care Res (Hoboken). 2021 12; 73(12):1739-1745. PMID: 33242376.
      View in: PubMed
    19. Jones JT, Smith C, Talib N. Brief Musculoskeletal Screen and Patient Education for Down Syndrome-Associated Arthritis. Glob Pediatr Health. 2021; 8:2333794X211045562. PMID: 34527768.
      View in: PubMed
    20. Worley E, Li W, Jones JT. Atypical Presentation of Systemic Arthritis in a Toddler with Down Syndrome. Case Rep Pediatr. 2021; 2021:6567770. PMID: 34422425.
      View in: PubMed
    21. Jones JT, Smith C, Talib N. Assessment of Down Syndrome-Associated Arthritis: A Survey of Down Syndrome Clinic Providers. Glob Pediatr Health. 2021; 8:2333794X21999134. PMID: 33796632.
      View in: PubMed
    22. Lypka M, Shah K, Jones J. Prosthetic temporomandibular joint reconstruction in a cohort of adolescent females with juvenile idiopathic arthritis. Pediatr Rheumatol Online J. 2020 Sep 04; 18(1):68. PMID: 32887620.
      View in: PubMed
    23. Nicek A, Talib N, Lovell D, Smith C, Becker ML, Jones JT. Assessment and treatment of Down syndrome-associated arthritis: a survey of pediatric rheumatologists. Pediatr Rheumatol Online J. 2020 Jul 13; 18(1):57. PMID: 32660497.
      View in: PubMed
    24. Jones JT, Talib N, Lovell D, Becker ML. Clinical Features and Treatment of Down Syndrome Arthropathy: Experience from Two US Tertiary Hospitals. Paediatr Drugs. 2019 Feb; 21(1):33-39. PMID: 30547384.
      View in: PubMed
    25. Donnelly C, Cunningham N, Jones JT, Ji L, Brunner HI, Kashikar-Zuck S. Fatigue and depression predict reduced health-related quality of life in childhood-onset lupus. Lupus. 2018 Jan; 27(1):124-133. PMID: 28662595.
      View in: PubMed
    26. Gulati G, Jones JT, Lee G, Altaye M, Beebe DW, Meyers-Eaton J, Wiley K, Brunner HI, DiFrancesco MW. Altered Blood-Brain Barrier Permeability in Patients With Systemic Lupus Erythematosus: A Novel Imaging Approach. Arthritis Care Res (Hoboken). 2017 Feb; 69(2):299-305. PMID: 27110957.
      View in: PubMed
    27. Jones JT, Carle AC, Wootton J, Liberio B, Lee J, Schanberg LE, Ying J, Morgan DeWitt E, Brunner HI. Validation of Patient-Reported Outcomes Measurement Information System Short Forms for Use in Childhood-Onset Systemic Lupus Erythematosus. Arthritis Care Res (Hoboken). 2017 01; 69(1):133-142. PMID: 27111350.
      View in: PubMed
    28. Jones JT, Cunningham N, Kashikar-Zuck S, Brunner HI. Pain, Fatigue, and Psychological Impact on Health-Related Quality of Life in Childhood-Onset Lupus. Arthritis Care Res (Hoboken). 2016 Jan; 68(1):73-80. PMID: 26195020.
      View in: PubMed
    29. Jones JT, DiFrancesco M, Zaal AI, Klein-Gitelman MS, Gitelman D, Ying J, Brunner HI. Childhood-onset lupus with clinical neurocognitive dysfunction shows lower streamline density and pairwise connectivity on diffusion tensor imaging. Lupus. 2015 Sep; 24(10):1081-6. PMID: 25701565.
      View in: PubMed
    30. Brunner HI, Klein-Gitelman MS, Zelko F, Beebe DW, Foell D, Lee J, Zaal A, Jones J, Roebuck-Spencer T, Ying J. Blood-based candidate biomarkers of the presence of neuropsychiatric systemic lupus erythematosus in children. Lupus Sci Med. 2014; 1(1):e000038. PMID: 25396068.
      View in: PubMed
    31. Ahlers-Schmidt CR, Jones JT, Chesser A, Weeks K. Evaluating opportunities for text message communication: a survey of parents and teens. Telemed J E Health. 2013 Sep; 19(9):711-3. PMID: 23808887.
      View in: PubMed
    32. Hart T, Ahlers-Schmidt CR, Chesser A, Jones J, Williams KS, Wittler RR. Physician impressions of using text message technology to increase vaccination compliance. Telemed J E Health. 2011 Jul-Aug; 17(6):427-30. PMID: 21612518.
      View in: PubMed
    33. Chesser A, Paschal A, Hart T, Jones J, Williams KS, Ahlers-Schmidt CR. Communication practices for pediatric immunization information: physician perceptions of parent health literacy skills. Clin Pediatr (Phila). 2012 May; 51(5):504-6. PMID: 21525085.
      View in: PubMed
    34. Kroeker DA, Hinkle JL, Jones JT, Scrafford DA, Rohr MK, Wittler RR. Picture of the month. Contact vaccinia. Arch Pediatr Adolesc Med. 2011 Feb; 165(2):177. PMID: 21300659.
      View in: PubMed
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