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Last Name
Institution

Kristin A. Stegenga, PhD, CPON

TitleNurse Researcher
InstitutionChildren's Mercy Kansas City
DepartmentPediatrics
Address2401 Gillham Rd
Kansas City MO 64108
ORCID ORCID Icon0000-0002-3738-9561 Additional info
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    Other Positions
    TitleAdjunct Assistant Professor
    InstitutionUniversity of Missouri-Kansas City
    DepartmentPediatrics


    Collapse Biography 
    Collapse education and training
    University of Missouri, Kansas City, Kansas City, MOPhD2007Nursing
    University of Kansas, Lawrence, KSMSN1997

    Collapse Bibliography 
    Collapse selected publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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    1. Stegenga K, Erickson JM, Linder L, Macpherson CF, Elswick RK, Ameringer S. Development and psychometric evaluation of the Symptom Self-Management Behaviors Tool for adolescents/young adults with cancer. Palliat Support Care. 2024 Apr; 22(2):274-280. PMID: 37387259.
      View in: PubMed
    2. Stegenga K, Henley AK, Harman E, Robb SL. Shifting perspectives and transformative change: Parent perspectives of an active music engagement intervention for themselves and their child with cancer. Pediatr Blood Cancer. 2024 May; 71(5):e30913. PMID: 38337169.
      View in: PubMed
    3. Robb SL, Russ KA, Holochwost SJ, Stegenga K, Perkins SM, Jacob SA, Henley AK, MacLean JA. Protocol and biomarker strategy for a multi-site randomized controlled trial examining biological mechanisms and dosing of active music engagement in children with acute lymphoblastic leukemia and lymphoma and parents. BMC Complement Med Ther. 2023 Mar 27; 23(1):90. PMID: 36973774.
      View in: PubMed
    4. Robb SL, Stegenga K, Perkins SM, Stump TE, Moody KM, Henley AK, MacLean J, Jacob SA, Delgado D, Haut PR. Mediators and Moderators of Active Music Engagement to Reduce Traumatic Stress Symptoms and Improve Well-being in Parents of Young Children With Cancer. Integr Cancer Ther. 2023 Jan-Dec; 22:15347354231218266. PMID: 38145309.
      View in: PubMed
    5. Linder LA, Newman A, Bernier Carney KM, Wawrzynski S, Stegenga K, Chiu YS, Jung SH, Iacob E, Lewis M, Linder C, Fox K, Altizer R. Symptoms and daily experiences reported by children with cancer using a game-based app. J Pediatr Nurs. 2022 Jul-Aug; 65:33-43. PMID: 35490550.
      View in: PubMed
    6. Bernier Carney KM, Stegenga K, Linder LA. Informing Parents as Caregivers With a Symptom Assessment App Developed for Children With Cancer. J Pediatr Hematol Oncol Nurs. 2022 Jul-Aug; 39(4):264-272. PMID: 35791850.
      View in: PubMed
    7. Knott D, Krater C, MacLean J, Robertson K, Stegenga K, Robb SL. Music Therapy for Children with Oncology & Hematological Conditions and Their Families: Advancing the Standards of Psychosocial Care. J Pediatr Hematol Oncol Nurs. 2022 Jan-Feb; 39(1):49-59. PMID: 35722869.
      View in: PubMed
    8. MacLean JA, Stegenga KA, Henley AK, Robb SL. Implementing NIH Behavior Change Consortium Treatment Fidelity Recommendations in a Multi-Site Randomized Controlled Trial of an Active Music Engagement Intervention for Young Children with Cancer and Parents. Integr Cancer Ther. 2022 Jan-Dec; 21:15347354221140491. PMID: 36510388.
      View in: PubMed
    9. Stegenga KA, Erickson JM. Introduction to Special Issue. J Pediatr Hematol Oncol Nurs. 2022 Jan-Feb; 39(1):5. PMID: 35722866.
      View in: PubMed
    10. Ameringer S, Elswick RK, Stegenga K, Macpherson CF, Erickson JM, Linder L. Symptom Profiles of Adolescents and Young Adults in Active Cancer Treatment by Diagnostic Groups. Cancer Nurs. 2022 Jul-Aug 01; 45(4):306-315. PMID: 34966060.
      View in: PubMed
    11. Haase JE, Stegenga K, Robb SL, Hooke MC, Burns DS, Monahan PO, Stump TE, Henley AK, Haut PR, Cherven B, Roll L, Langevin AM, Pickler RH, Albritton K, Hawkins D, Osterkamp E, Mitby P, Smith J, Diaz VR, Garcia-Frausto E, Moore M. Randomized Clinical Trial of a Self-care and Communication Intervention for Parents of Adolescent/Young Adults Undergoing High-Risk Cancer Treatment: A Report From the Children's Oncology Group. Cancer Nurs. 2022 Jul-Aug 01; 45(4):316-331. PMID: 34817419.
      View in: PubMed
    12. Linder LA, Ameringer S, Stegenga K, Macpherson CF, Erickson J. A Person-Centered Approach to Symptom Assessment and Management for Children and Adolescents Receiving Cancer Treatment. Semin Oncol Nurs. 2021 06; 37(3):151164. PMID: 34134924.
      View in: PubMed
    13. Holochwost SJ, Robb SL, Henley AK, Stegenga K, Perkins SM, Russ KA, Jacob SA, Delgado D, Haase JE, Krater CM. Active Music Engagement and Cortisol as an Acute Stress Biomarker in Young Hematopoietic Stem Cell Transplant Patients and Caregivers: Results of a Single Case Design Pilot Study. Front Psychol. 2020; 11:587871. PMID: 33224077.
      View in: PubMed
    14. Stegenga K, Linder L, Erickson JM, Ameringer S, Macpherson CF. Building a Research Team in Adolescent/Young Adult Oncology Nursing. J Pediatr Oncol Nurs. 2020 Sep/Oct; 37(5):330-337. PMID: 32646270.
      View in: PubMed
    15. Fulbright JM, Hein W, Stegenga K, Alsman K, Sharma M, Ryan R, Klemp JR, Nelson EL, Raman S. Implementing a stepwise educational approach for bridging the gap between specialty and primary care for childhood cancer survivors. J Cancer Surviv. 2020 10; 14(5):660-665. PMID: 32394044.
      View in: PubMed
    16. Linder LA, Newman AR, Stegenga K, Chiu YS, Wawrzynski SE, Kramer H, Weir C, Narus S, Altizer R. Feasibility and acceptability of a game-based symptom-reporting app for children with cancer: perspectives of children and parents. Support Care Cancer. 2021 Jan; 29(1):301-310. PMID: 32358779.
      View in: PubMed
    17. Macpherson CF, Stegenga K, Erickson JM, Linder LA, Newman AR, Elswick RK, Charlson J, Thomas S, Ameringer S. Adolescents and Young Adults with Cancer Using a Symptom Heuristics App: Provider Perceptions and Actions. J Adolesc Young Adult Oncol. 2020 10; 9(5):579-585. PMID: 32326804.
      View in: PubMed
    18. Haase JE, Robb SL, Burns DS, Stegenga K, Cherven B, Hendricks-Ferguson V, Roll L, Docherty SL, Phillips C. Adolescent/Young Adult Perspectives of a Therapeutic Music Video Intervention to Improve Resilience During Hematopoietic Stem Cell Transplant for Cancer. J Music Ther. 2020 Feb 25; 57(1):3-33. PMID: 31802124.
      View in: PubMed
    19. Russ KA, Holochwost SJ, Perkins SM, Stegenga K, Jacob SA, Delgado D, Henley AK, Haase JE, Robb SL. Cortisol as an Acute Stress Biomarker in Young Hematopoietic Cell Transplant Patients/Caregivers: Active Music Engagement Protocol. J Altern Complement Med. 2020 May; 26(5):424-434. PMID: 32073877.
      View in: PubMed
    20. Macpherson CF, Johnson RH, Landwehr MS, Watson SE, Stegenga K. "Aftermath": Financial Resource Requirements of Young Adults Moving Forward After Cancer Treatment. J Adolesc Young Adult Oncol. 2020 06; 9(3):354-358. PMID: 31851551.
      View in: PubMed
    21. Linder LA, Stegenga K, Erickson J, Ameringer S, Newman AR, Chiu YS, Macpherson CF. Priority Symptoms, Causes, and Self-Management Strategies Reported by AYAs With Cancer. J Pain Symptom Manage. 2019 11; 58(5):774-783. PMID: 31319104.
      View in: PubMed
    22. Landon L, Crane S, Nance S, Stegenga K, Cherven B, Perez Prado LN, Butrum KD, Beacham B, Haase J. Engaging Clinical Nurses in Research: Nurses' Experiences Delivering a Communication Intervention in a Behavioral Oncology Clinical Trial. Nurs Adm Q. 2019 Apr/Jun; 43(2):175-185. PMID: 30839454.
      View in: PubMed
    23. Erickson JM, Ameringer S, Linder L, Macpherson CF, Elswick RK, Luebke JM, Stegenga K. Using a Heuristic App to Improve Symptom Self-Management in Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2019 04; 8(2):131-141. PMID: 30358473.
      View in: PubMed
    24. Kelly KP, Withycombe J, Stegenga K, Rodgers C. The Why Behind the Questions: Question-asking in Parents of Children Newly Diagnosed With Cancer - A Report From the Children's Oncology Group. J Pediatr Nurs. 2018 Nov - Dec; 43:23-28. PMID: 30473153.
      View in: PubMed
    25. Lohani M, Hendershot KA, Pelletier W, Stegenga K, Dixon M, Hinds PS, Alderfer MA, Pentz RD. Potential Benefits to Families, Children, and Adolescents Enrolled in Longitudinal Qualitative Research. IRB. 2018 Jul-Aug; 40(4):1-7. PMID: 30387974.
      View in: PubMed
    26. Bartholomew JL, Dai H, August KJ, Ryan RE, Stegenga KA. Feasibility of Outpatient High-Dose Methotrexate Infusions in Pediatric Patients With B-Lineage Acute Lymphoblastic Leukemia. J Adv Pract Oncol. 2018 May-Jun; 9(4):381-386. PMID: 30719391.
      View in: PubMed
    27. Stegenga K, Pentz RD, Alderfer MA, Pelletier W, Fairclough D, Hinds PS. Child and Parent Access to Transplant Information and Involvement in Treatment Decision Making. West J Nurs Res. 2019 04; 41(4):576-591. PMID: 29644930.
      View in: PubMed
    28. Nelson-Brantley HV, Ford DJ, Miller KL, Stegenga KA, Lee RH, Bott MJ. Leading Change: A Case Study of the First Independent Critical-Access Hospital to Achieve Magnet? Designation. J Nurs Adm. 2018 Mar; 48(3):141-148. PMID: 29461350.
      View in: PubMed
    29. Groller KD, Teel C, Stegenga KH, El Chaar M. Patient perspectives about bariatric surgery unveil experiences, education, satisfaction, and recommendations for improvement. Surg Obes Relat Dis. 2018 06; 14(6):785-796. PMID: 29703505.
      View in: PubMed
    30. Haase JE, Kintner EK, Robb SL, Stump TE, Monahan PO, Phillips C, Stegenga KA, Burns DS. The Resilience in Illness Model Part 2: Confirmatory Evaluation in Adolescents and Young Adults With Cancer. Cancer Nurs. 2017 Nov/Dec; 40(6):454-463. PMID: 27984241.
      View in: PubMed
    31. Linder LA, Erickson JM, Stegenga K, Macpherson CF, Wawrzynski S, Wilson C, Ameringer S. Symptom self-management strategies reported by adolescents and young adults with cancer receiving chemotherapy. Support Care Cancer. 2017 12; 25(12):3793-3806. PMID: 28718079.
      View in: PubMed
    32. Hendricks-Ferguson VL, Barnes YJ, Cherven B, Stegenga K, Roll L, Docherty SL, Haase JE. Stories and Music for Adolescent/Young Adult Resilience During Transplant Partnerships: Strategies to Support Academic-Clinical Nurse Collaborations in Behavioral Intervention Studies. Clin Nurse Spec. 2017 Jul/Aug; 31(4):195-200. PMID: 28594670.
      View in: PubMed
    33. White TE, Hendershot KA, Dixon MD, Pelletier W, Haight A, Stegenga K, Alderfer MA, Cox L, Switchenko JM, Hinds P, Pentz RD. Family Strategies to Support Siblings of Pediatric Hematopoietic Stem Cell Transplant Patients. Pediatrics. 2017 Feb; 139(2). PMID: 28119426.
      View in: PubMed
    34. Seefeldt J, Wood S, Bolton P, Fitzpatrick T, Stegenga K, Roberts C. Perianesthesia Nurses Are My Second Family: A Qualitative Descriptive Study. J Perianesth Nurs. 2017 Dec; 32(6):578-588. PMID: 29157764.
      View in: PubMed
    35. Rodgers CC, Stegenga K, Withycombe JS, Sachse K, Kelly KP. Processing Information After a Child's Cancer Diagnosis-How Parents Learn. J Pediatr Oncol Nurs. 2016 Nov/Dec; 33(6):447-459. PMID: 28084180.
      View in: PubMed
    36. Keim-Malpass J, Stegenga K, Loudin B, Kennedy C, Kools S. "It's Back! My Remission Is Over": Online Communication of Disease Progression Among Adolescents With Cancer. J Pediatr Oncol Nurs. 2016 May-Jun; 33(3):209-17. PMID: 26483425.
      View in: PubMed
    37. Ameringer S, Erickson JM, Macpherson CF, Stegenga K, Linder LA. Symptoms and Symptom Clusters Identified by Adolescents and Young Adults With Cancer Using a Symptom Heuristics App. Res Nurs Health. 2015 Dec; 38(6):436-48. PMID: 26455729.
      View in: PubMed
    38. McClellan W, Fulbright JM, Doolittle GC, Alsman K, Klemp JR, Ryan R, Nelson EL, Stegenga K, Krebill H, Al-hihi EM, Schuetz N, Heiman A, Lowry B. A Collaborative Step-Wise Process to Implementing an Innovative Clinic for Adult Survivors of Childhood Cancer. J Pediatr Nurs. 2015 Sep-Oct; 30(5):e147-55. PMID: 26202467.
      View in: PubMed
    39. Weiss AR, Hayes-Lattin B, Kutny MA, Stock W, Stegenga K, Freyer DR. Inclusion of Adolescents and Young Adults in Cancer Clinical Trials. Semin Oncol Nurs. 2015 Aug; 31(3):197-205. PMID: 26210198.
      View in: PubMed
    40. Linder LA, Ameringer S, Baggott C, Erickson J, Macpherson CF, Rodgers C, Stegenga K. Measures and Methods for Symptom and Symptom Cluster Assessment in Adolescents and Young Adults with Cancer. Semin Oncol Nurs. 2015 Aug; 31(3):206-15. PMID: 26210199.
      View in: PubMed
    41. Stegenga K, Macpherson CF. "I'm a survivor, go study that word and you'll see my name": adolescent and cancer identity work over the first year after diagnosis. Cancer Nurs. 2014 Nov-Dec; 37(6):418-28. PMID: 24621964.
      View in: PubMed
    42. Macpherson CF, Linder LA, Ameringer S, Erickson J, Stegenga K, Woods NF. Feasibility and acceptability of an iPad application to explore symptom clusters in adolescents and young adults with cancer. Pediatr Blood Cancer. 2014 Nov; 61(11):1996-2003. PMID: 25066927.
      View in: PubMed
    43. Stegenga K. Impact of a teen weekend on the social support needs of adolescents with cancer. J Pediatr Oncol Nurs. 2014 Sep-Oct; 31(5):293-7. PMID: 25013007.
      View in: PubMed
    44. Pelletier W, Hinds PS, Alderfer MA, Fairclough DL, Stegenga K, Pentz RD. Themes reported by families as important when proceeding with pediatric hematopoietic stem cell transplantation. Pediatr Blood Cancer. 2014 Sep; 61(9):1625-31. PMID: 24798514.
      View in: PubMed
    45. Pentz RD, Alderfer MA, Pelletier W, Stegenga K, Haight AE, Hendershot KA, Dixon M, Fairclough D, Hinds P. Unmet needs of siblings of pediatric stem cell transplant recipients. Pediatrics. 2014 May; 133(5):e1156-62. PMID: 24777206.
      View in: PubMed
    46. Robb SL, Burns DS, Stegenga KA, Haut PR, Monahan PO, Meza J, Stump TE, Cherven BO, Docherty SL, Hendricks-Ferguson VL, Kintner EK, Haight AE, Wall DA, Haase JE. Randomized clinical trial of therapeutic music video intervention for resilience outcomes in adolescents/young adults undergoing hematopoietic stem cell transplant: a report from the Children's Oncology Group. Cancer. 2014 Mar 15; 120(6):909-17. PMID: 24469862.
      View in: PubMed
    47. Meyer, M, Marzen-Groller, K, Myers, S, Busenhart, C, Waugh, S. & Stegenga, K. Simulation as a learning experience: Perceptions of new RN’s. Clinical Simulation in Nursing. 2014; 10(8):384-394.
    48. Roll L, Stegenga K, Hendricks-Ferguson V, Barnes YJ, Cherven B, Docherty SL, Robb SL, Haase JE. Engaging nurses in research for a randomized clinical trial of a behavioral health intervention. Nurs Res Pract. 2013; 2013:183984. PMID: 24102024.
      View in: PubMed
    49. Stegenga K, Burks LM. Using photovoice to explore the unique life perspectives of youth with sickle cell disease: a pilot study. J Pediatr Oncol Nurs. 2013 Sep-Oct; 30(5):269-74. PMID: 23962960.
      View in: PubMed
    50. McClellan W, Klemp JR, Krebill H, Ryan R, Nelson EL, Panicker J, Sharma M, Stegenga K. Understanding the functional late effects and informational needs of adult survivors of childhood cancer. Oncol Nurs Forum. 2013 May 01; 40(3):254-62. PMID: 23615138.
      View in: PubMed
    51. Linder LA, Ameringer S, Erickson J, Macpherson CF, Stegenga K, Linder W. Using an iPad in research with children and adolescents. J Spec Pediatr Nurs. 2013 Apr; 18(2):158-4. PMID: 23678681.
      View in: PubMed
    52. Love B, Moskowitz MC, Crook B, Thompson CM, Donovan-Kicken E, Stegenga K, Macpherson CF, Johnson RH. Defining adolescent and young adult (AYA) exercise and nutrition needs: concerns communicated in an online cancer support community. Patient Educ Couns. 2013 Jul; 92(1):130-3. PMID: 23490173.
      View in: PubMed
    53. Erickson JM, Macpherson CF, Ameringer S, Baggott C, Linder L, Stegenga K. Symptoms and symptom clusters in adolescents receiving cancer treatment: a review of the literature. Int J Nurs Stud. 2013 Jun; 50(6):847-69. PMID: 23200129.
      View in: PubMed
    54. Docherty SL, Robb SL, Phillips-Salimi C, Cherven B, Stegenga K, Hendricks-Ferguson V, Roll L, Donovan Stickler M, Haase J. Parental perspectives on a behavioral health music intervention for adolescent/young adult resilience during cancer treatment: report from the children's oncology group. J Adolesc Health. 2013 Feb; 52(2):170-8. PMID: 23332481.
      View in: PubMed
    55. Hendricks-Ferguson VL, Cherven BO, Burns DS, Docherty SL, Phillips-Salimi CR, Roll L, Stegenga KA, Donovan Stickler M, Haase JE. Recruitment strategies and rates of a multi-site behavioral intervention for adolescents and young adults with cancer. J Pediatr Health Care. 2013 Nov-Dec; 27(6):434-42. PMID: 22658379.
      View in: PubMed
    56. Pentz RD, Pelletier W, Alderfer MA, Stegenga K, Fairclough DL, Hinds PS. Shared decision-making in pediatric allogeneic blood and marrow transplantation: what if there is no decision to make? Oncologist. 2012; 17(6):881-5. PMID: 22615217.
      View in: PubMed
    57. Musick BS, Robb SL, Burns DS, Stegenga K, Yan M, McCorkle KJ, Haase JE. Development and use of a web-based data management system for a randomized clinical trial of adolescents and young adults. Comput Inform Nurs. 2011 Jun; 29(6):337-43. PMID: 21116183.
      View in: PubMed
    58. Phillips-Salimi CR, Donovan Stickler MA, Stegenga K, Lee M, Haase JE. Principles and strategies for monitoring data collection integrity in a multi-site randomized clinical trial of a behavioral intervention. Res Nurs Health. 2011 Aug; 34(4):362-71. PMID: 21567433.
      View in: PubMed
    59. Stegenga K. What are the unique emotional needs for adolescents diagnosed with cancer? ONS Connect. 2010 Mar; 25(3):11. PMID: 20344889.
      View in: PubMed
    60. Stegenga K, Ward-Smith P. On receiving the diagnosis of cancer: the adolescent perspective. J Pediatr Oncol Nurs. 2009 Mar-Apr; 26(2):75-80. PMID: 19190175.
      View in: PubMed
    61. Stegenga K, Ward-Smith P. The adolescent perspective on participation in treatment decision making: a pilot study. J Pediatr Oncol Nurs. 2008 Mar-Apr; 25(2):112-7. PMID: 18270308.
      View in: PubMed
    62. Ward-Smith, P, Hamlin, J, Bartholomew, J, and Stegenga, K. Quality of Life Among Adolescents with Cancer. Journal of Pediatric Oncology Nursing. 2007; 24(3):166-71.
    63. Curry H, Schmer C, Ward-Smith P, Stegenga K, Mehrhof A, Sarcone S. Kid cards: teaching children about their medicines. J Pediatr Health Care. 2006 Nov-Dec; 20(6):414-8. PMID: 17071375.
      View in: PubMed
    64. Routhieaux J, Sarcone S, Stegenga K. Neurocognitive sequelae of sickle cell disease: current issues and future directions. J Pediatr Oncol Nurs. 2005 May-Jun; 22(3):160-7. PMID: 15855477.
      View in: PubMed
    65. Stegenga, K, Deatrick J, Drotar D, Kelly KP, Meza J, Pyke-Grimm KA, Stewart JL, Zavala O. Consensus statement: Parental Treatment Decision Making in Pediatric Oncology. Seminars in Oncology Nursing. 2005; 21(2):105-6.
    66. Stegenga KA, Ward-Smith P, Hinds PS, Routhieaux JA, Woods GM. Quality of life among children with sickle cell disease receiving chronic transfusion therapy. J Pediatr Oncol Nurs. 2004 Jul-Aug; 21(4):207-13. PMID: 15490865.
      View in: PubMed
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